Never be afraid to raise your voice for honesty and truth and compassion against injustice and lying and greed. If people all over the world would do this, it would change the earth. ~ William Faulkner

WHO ARE WE?

The Bronx Developmental Disabilities Council is an association of parents, advocates, consumers and professionals concerned with the needs of people with developmental disabilities who reside in the Bronx. Through our Executive Board, Standing Committees and Special Events, we provide a forum for the discussion of issues, provide information and support to families, and advocate for the social and economic issues that affect the quality of life of the people we serve.

The council acts in an advisory capacity to the New York City Department of Health and Mental Hygiene and the New York State Office for People with Developmental Disabilities, identifying unmet needs and reviewing service proposals. We provide representation to the InterAgency Council of Developmental Disabilities Agencies and work in cooperation with New York City's other four Borough Councils as well as other advocacy and planning groups.

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IAC - ACTION ALERT LETTER WRITING CAMPAIGN:
Please click on the link below and follow the instructions to assist with this campaign.

On November 21st the Governor vetoed four bills representing critical issues to people with developmental disabilities and their families. The vetoes were a disappointment but they represent a beginning rather than an ending. With the Governor’s budget proposal due the end of next month, the vetoes represent a political opportunity to initiate an effort with the public, the press and, most importantly, with the Legislature and the Governor. They need to address the exploding crisis faced by families because New York State has effectively stopped development of day and residential opportunities for people with developmental disabilities who are living at home with aging family members.
Mobilize your families to send letters to the Governor,
State Senator and Assembly member NOW!
MESSAGE:
· Family members must urge their State Senator and Assembly member to let the Governor know that it is important to their constituents that additional funding for the development of critically needed residential and day supports and services be included in his 2015-2016 Executive Budget.
· Let Governor Cuomo know that there is an exploding crisis. Many families are desperate for day and/or residential supports and services for their loved ones with developmental disabilities.
· Urge Governor Cuomo to include additional funding for these supports and services in his Executive Budget.
· Legislators must be reminded that the Governor vetoed four bills that were passed by both houses without a single negative vote. Family members must tell them that they expect them to continue to support the key issue these bills represent. They need to reach out to the Governor and their leaders and advocate for a budget that addresses supports and services for people living at home.
Click HERE www.capwiz.com/iacny/home/ to send emails or letters to the Governor and your Senator and Assembly member.
IMPORTANT INSTRUCTIONS:
When you get to the page, you’ll see two boxes - the top is for legislators and the bottom is for the Governor - please repeat the procedure twice to send letters separately to the Governor and then to your Senator and Assembly member.
We need to influence the Governor’s budget proposal due out on or before February 1st. Once his budget is presented, much has already been decided.

Winifred Schiff
Associate Executive Director for Legislative Affairs
InterAgency Council of Developmental Disabilities Agencies, Inc.
150 West 30th Street 15th floor
New York, NY 10001
o- 212-645-6360
c- 917-750-1497
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 Please help us fill out this survey that is being conducted by the Center for START Services at the University of New Hampshire's Institute on Disability in partnership with New York State Office of People with Developmental Disabilities (OPWDD).

The New York State Office For People With Developmental Disabilities (OPWDD) has asked the University of New Hampshire's Institute on Disability (IOD) to conduct a survey of how the current service system in New York City serves individuals with an Intellectual or Developmental Disability (ID/DD) and a co-occurring mental/behavioral health challenge.  This survey is designed to look at the services currently available in New York City and where they might need to be strengthened or improved.  We are hoping to collect as many responses as possible from individuals connected to any aspect of mental health or ID/DD services, so please take a few minutes to complete this survey by clicking on the link below.  Our goal is to collect approximately 3000 responses from individuals across New York City, so please forward this link to as many people within your organization and/or contact list as possible and ask them to complete it and forward it as well.

New York City Community Support Services Survey

If you have any problems with the link, please feel free to email me at ann.klein@unh.edu and I’ll be happy to assist.

We sincerely appreciate your help as we work together to improve services in New York City for individuals with IDD and their families.  Thanks for your time.

The IOD Team

Ann E. Klein, MA

SIRS Manager

University of New Hampshire

Institute on Disability

ann.klein@unh.edu

(513) 377-1464

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Please click here to sign the PETITION

The Bronx Summary of this petition: 

URGENT!

Please sign this petition urging Governor Cuomo to address the issue of long term residential planning and choice for people with Developmental Disabilities by including funding  in the NYS 2015-2016 budget for residential development for those living with their families in the community and in need of a 24 hr supervised setting,

This petition addresses the immediate (and future) shortage of community based "Residential Housing" accommodations, for our loved ones with a Developmental Disability living in the community, especially those living at home.  Currently there are over 400 families in the Bronx and as reported in the Wall Street Journal, 12,000 statewide awaiting residential services.

As parents and family members’ age, their death or serious illnesses lead to an Emergency Placement. Emergency Placements force placement in either an Institution, (hospital or rehabilitation setting) or Group Home anywhere in the state (away from family and the community).

This is a neglectful and unacceptable situation!  

IMPORTANT: Professionals working in the disability field who wish to support our cause can sign the petition but only as private citizens. Please do not sign using your agency.

 

ORIGINAL PETITION WRITTEN ON BEHALF OF ALL 5 OF THE NYC DD COUNCILS:


We, the undersigned, hereby declare a state of crisis in NYS regarding the lack of availability and development of adequately supervised, appropriate, accessible, inclusive and safe residential living opportunities for individuals with developmental disabilities. Due to the lack of such development, individuals with developmental disabilities are being put at risk when their family members/care givers are no longer able to care for them and/or to provide living supports to them.
It is documented that individuals throughout NYS have had to endure unnecessary confinement within hospital settings, rehabilitation settings and within other segregated institutional settings due to the lack of more appropriate community based settings. We believe that NYS’s lack of planning and funding for more appropriate community based options for these individuals constitutes the neglect of each individual who has had to suffer such unnecessary hospital and nursing home confinement and must immediately cease.
We hereby call upon Governor Andrew Cuomo to ensure that plans to address this neglectful situation are developed, made known to the public with adequate time to respond to such plans, and included for funding in the NYS fy 2015 – 2016 budget. These plans must include adequately supervised, appropriate, accessible, inclusive and safe residential living opportunities for individuals with developmental disabilities who are at risk for losing their current living situation due to frailty of their parents/siblings/care givers or other crisis situations within their current living environments.

Sincerely,
[Your name]

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MAY 22ND FAMILY CONFERENCE NEWS:

Please  Check out these presentations below from our  Family Support Conference. They're under the "RESOURCES" page too.

2014 Family Support Guide

Gary Lind's (AHRC) Presentation on New Trends in Health Care

Justice Center Presentation

Check out The Gallery too for pictures from the conference.

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Please check out OPWDD's NEW FRONT DOOR Policy Manual here:

BRONX Front Door Training Schedule for  2014: Please click on link below to view dates.

Upcoming Front Door Schedule

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Find your elected officials here:

Step#1:..click on the link below

http://capwiz.com/thearc/dbq/officials/?affiliate_lookup=1

Step #2: Put in your zip code or the zip code of where your program is located

Step 3: Hit enter...the site will generate a list of all your elected officials.

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Medicaid Procedures for Transportation to Medical related appointments::

Welcome to the LogistiCare website for New York City Medicaid enrollees, medical practitioners and non-emergency medical transportation providers. The New York State Department of Health has contracted with LogistiCare to manage Medicaid non-emergency medical transportation services (NEMT) in New York City.

For Details on scheduling your trip, please click on Enrollees, then click on FAQ's

http://www.nycmedicaidride.net/en-us/home.aspx

Call 1-877-564-5922 

PS: Always have your Medicaid Card ready when calling & always ask for your confirmation number!!

 

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