Never be afraid to raise your voice for honesty and truth and compassion against injustice and lying and greed. If people all over the world would do this, it would change the earth. ~ William Faulkner

WHO ARE WE?

The Bronx Developmental Disabilities Council is an association of parents, advocates, consumers and professionals concerned with the needs of people with developmental disabilities who reside in the Bronx. Through our Executive Board, Standing Committees and Special Events, we provide a forum for the discussion of issues, provide information and support to families, and advocate for the social and economic issues that affect the quality of life of the people we serve.

The council acts in an advisory capacity to the New York City Department of Health and Mental Hygiene and the New York State Office for People with Developmental Disabilities, identifying unmet needs and reviewing service proposals. We provide representation to the InterAgency Council of Developmental Disabilities Agencies and work in cooperation with New York City's other four Borough Councils as well as other advocacy and planning groups.

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2014 Bronx DD Council 11th Annual Health Care Conference -  Life and Systems Transitions: Periods of Change as Reflected in Health, Education and Adult Service Planning.

Register Online here >>  under "Upcoming Events, Nov. 21st
Place: Jacobi Medical Center
Nurses Residence Building 4,
Rotunda
Date:  Friday, November 21, 2014
Time: 8:30 AM - 4:00 PM

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 Please click here to sign the PETITION

The Bronx Summary of this petition: 

URGENT!

Please sign this petition urging Governor Cuomo to address the issue of long term residential planning and choice for people with Developmental Disabilities by including funding  in the NYS 2015-2016 budget for residential development for those living with their families in the community and in need of a 24 hr supervised setting,

This petition addresses the immediate (and future) shortage of community based "Residential Housing" accommodations, for our loved ones with a Developmental Disability living in the community, especially those living at home.  Currently there are over 400 families in the Bronx and as reported in the Wall Street Journal, 12,000 statewide awaiting residential services.

As parents and family members’ age, their death or serious illnesses lead to an Emergency Placement. Emergency Placements force placement in either an Institution, (hospital or rehabilitation setting) or Group Home anywhere in the state (away from family and the community).

This is a neglectful and unacceptable situation!  

IMPORTANT: Professionals working in the disability field who wish to support our cause can sign the petition but only as private citizens. Please do not sign using your agency.

 

ORIGINAL PETITION WRITTEN ON BEHALF OF ALL 5 OF THE NYC DD COUNCILS:


We, the undersigned, hereby declare a state of crisis in NYS regarding the lack of availability and development of adequately supervised, appropriate, accessible, inclusive and safe residential living opportunities for individuals with developmental disabilities. Due to the lack of such development, individuals with developmental disabilities are being put at risk when their family members/care givers are no longer able to care for them and/or to provide living supports to them.
It is documented that individuals throughout NYS have had to endure unnecessary confinement within hospital settings, rehabilitation settings and within other segregated institutional settings due to the lack of more appropriate community based settings. We believe that NYS’s lack of planning and funding for more appropriate community based options for these individuals constitutes the neglect of each individual who has had to suffer such unnecessary hospital and nursing home confinement and must immediately cease.
We hereby call upon Governor Andrew Cuomo to ensure that plans to address this neglectful situation are developed, made known to the public with adequate time to respond to such plans, and included for funding in the NYS fy 2015 – 2016 budget. These plans must include adequately supervised, appropriate, accessible, inclusive and safe residential living opportunities for individuals with developmental disabilities who are at risk for losing their current living situation due to frailty of their parents/siblings/care givers or other crisis situations within their current living environments.

Sincerely,
[Your name]

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MAY 22ND FAMILY CONFERENCE NEWS:

Please  Check out these presentations below from our  Family Support Conference. They're under the "RESOURCES" page too.

2014 Family Support Guide

Gary Lind's (AHRC) Presentation on New Trends in Health Care

Justice Center Presentation

Check out The Gallery too for pictures from the conference.

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Please check out OPWDD's NEW FRONT DOOR Policy Manual here:

BRONX Front Door Training Schedule for  2014: Please click on link below to view dates.

Upcoming Front Door Schedule

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Find your elected officials here:

Step#1:..click on the link below

http://capwiz.com/thearc/dbq/officials/?affiliate_lookup=1

Step #2: Put in your zip code or the zip code of where your program is located

Step 3: Hit enter...the site will generate a list of all your elected officials.

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Medicaid Procedures for Transportation to Medical related appointments::

Welcome to the LogistiCare website for New York City Medicaid enrollees, medical practitioners and non-emergency medical transportation providers. The New York State Department of Health has contracted with LogistiCare to manage Medicaid non-emergency medical transportation services (NEMT) in New York City.

For Details on scheduling your trip, please click on Enrollees, then click on FAQ's

http://www.nycmedicaidride.net/en-us/home.aspx

Call 1-877-564-5922 

PS: Always have your Medicaid Card ready when calling & always ask for your confirmation number!!

 

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